Resilient
Together
Young Onset Cognitive Impairment or Dementia
A short-term program for newly diagnosed patients with young onset cognitive impairment or dementia and their care partner.
Developed by the Center for Health Outcomes and Interdisciplinary Research (CHOIR) and the Frontotemporal Disorders Unit at Massachusetts General Hospital in Boston, Massachusetts
Welcome to
Resilient Together
Thank you for your interest in the Resilient Together research study. This short-term program is designed to help support you and your care partner as you manage this diagnosis together.
can bring uncertainty about the future and intense emotions for individuals living with the diagnosis, their family members, friends, and extended support network.
These emotions can be big and overwhelming sometimes, and there are strategies that can help adapt to these life changes.
Having young onset cognitive impairment or dementia
Resilient Together was developed by a team of psychologists, neurologists, young onset cognitive impairment or dementia specialists, and individuals with a cognitive impairment or dementia diagnosis and their care partners.
It is based on what we know works best and the lived experiences of folks facing cognitive impairment or dementia.
Each care partnership will have a different life experience, and our team will work together to help this fit your journey.
This work is sponsored by
The National Institute of Aging (NIA)
What Do We Mean By Young Onset
Cognitive Impairment or Dementia?
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When someone younger than 65 shows signs of cognitive impairment or dementia, it is considered young onset (sometimes referred to as early-onset) cognitive impairment or dementia.
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There are a wide range of types of young onset cognitive impairment or dementia, including:
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Frontotemporal Dementia
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Primary Progressive Aphasia
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Posterior Cortical Atrophy
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Early-Onset Alzheimer's Disease
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Lewy Body Disease
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Parkinson's Disease
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Progressive Supranuclear Palsy
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Corticobasal Syndrome
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Vascular Cognitive Impairment
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Younger people with cognitive impairment or dementia are less likely to have memory loss as one of their first symptoms, compared with older people. They could mainly have problems with language, vision or behavior. They may also have problems with movement, balance, and coordination
Information
WHAT
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7 virtual sessions with a clinician, through Zoom.
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1 short orientation session and 6 program sessions.
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You will be randomly assigned to participate in one of two programs.
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Complete surveys before and after the program.
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Receive financial compensation up to $300 upon study completion.
WHEN
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Meet weekly with a clinical psychologist for ~45 minutes per session.
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Timing is flexible, whenever works for both you and your care partner and the team.
WHO
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You or someone you love have been diagnosed with young onset cognitive impairment or dementia in the last 6 months.
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You and someone you love want help managing stress.
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Both you and your care partner are interested in participating.
HOW
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Talk to your doctor and care team if interested.
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Contact any of the study coordinators for more information.
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Available through emails and phone calls.
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Interested?
Contact Us!
The Resilient Together team is always available for assistance.
If you are interested in participating and have questions,
please email or call us at:
✉️: mghresilienttogetheryod@mgb.org
📞: 617-726-6520
Meet The Rest
of The Team!
Acknowledgements
The Resilient Together Program is supported by collaborators, researchers, and stakeholders at Massachusetts General Hospital. We thank Dr. Ana-Maria Vranceanu, Dr. Brad Dickerson, Dr. Maggie Syme, and Dr. Evan Plys for their contribution, expertise, and continued support on this program. We also thank our sponsor, the National Institute of Aging (NIA), for their continued support of the Resilient Together Program.
Lastly, we extend our deepest gratitude to all Resilient Together participants—past, present, and future. The program and treatment manual were iteratively developed in partnership with individuals living with young onset cognitive impairment or dementia, their care partners, and professionals, with the goal of providing meaningful support to those newly navigating this diagnosis. Each treatment session attended and survey completed helps us continue to refine and strengthen the Resilient Together Program for all who may benefit.
